Food intolerance - Special formulas

(Children with food intolerance or any other disease that prevent digestion/food absorption, need special formulas to survive and these formulas are imported and very expensive. The Pregomin was withdrawn from the Brazilian market overnight (from the world market too according to the manufacture), without notice, putting children at risk! These children are hostages of their own illness and their own personal circumstances and do not deserve to be treated as "lab rats" having to be submitted to hospitalization, sudden change to other formulas, tests, pain and stress, all at once just because one company decided not to produce the medicine that most of them take for many years.)

sexta-feira, 3 de setembro de 2010

Food intolerance: PREGOMIN PEPTI DOES NOT SUBSTITUTE THE NEED FOR PREGOMIN ORIGINAL FORMULA

The DANNON Company bought Support Laboratory - makers of Pregomin Original Formula (also marketed under the name Milupa Pregomin in some countries) - and they launched Pregomin Peptide which is not the same as the Original Pregomin because although hydrolyzed, the new formula is not made of soy, but instead it is made with whey cow's milk.

Dannon's Customer Service department informed me that many children are not doing well with Pepto Pregomin, yet the company is no longer producing Pregomin Original. There is very little quantity left of the Original Pregomin at some distributors, and once their stock runs out, that will be it. Dannon is not going to produce the original formula.

What will we do with our children with special needs?

PREGOMIN PEPTI NOT A REPLACEMENT FOR PREGOMIN – WE NEED PREGOMIN ORIGINAL

My son still has no diagnosis. He spent his first year of life in the hospital using cow's milk. Throughout this year, my mother (a pediatrician) and I struggled to introduce a special milk to my son, as we were certain he could not tolerate cow’s milk, but the medical teams were adamant and insisted he had a severe gastro-esophagus reflux instead. That year he went through many problems, constant nasal and throat aspiration because of too much secretion, bronchospasm, he was intubated, and he had many apneas that may have caused irreversible brain damage.

The fact is that when we transferred my son to home care, we finally got a chance to prove to the doctors that, in fact, my son had a severe food intolerance (and it did not appear in the examinations they had conducted) - the proof is only clinical. In just a week taking only PREGOMIN – his secretions dried by 90%, and the frequent apneas stopped occurring.

After two years of a monotonous diet of only Pregomin original formula (hydrolyzed soy), the doctors then did a test with lactose-free milk protein and he showed skin reactions and bronchospasm – we took our son to the nutrologist to determine what caused the allergies whether it was some bovine related allergy to either milk or meat proteins. He has been forbidden several medications that contain substances resulting from bovine. Because of this, he has been classified as having “food neophobia” – the body’s refusal to any other food, and fruits and vegetables are being introduced gradually, one by one, because many are not able to be digested by our son, while others cause extreme reactions (severe constipation, severe diarrhea, gas, bloating, etc...) – and most are only eaten if processed in the blender and mixed in Pregomin Original formula milk (because of a swallowing disorder which he has).

My son's life is guaranteed by Pregomin. Without his Pregomin Original formula he will become malnourished and will not be able to survive.

2 comentários:

  1. I heard about this the other day and thought it was just fables. I dont understand why DUNNON wants to switch to cows milk when the Pregomin Original has so much consuption world-wide....

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  2. Well, I think there is a lot more behind that decision than we can ever imagine. It is surely something BIG considering the harm it can cause to so many children that depend on that milk.

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